Patient Resources
U.S. Based Foundations
Hunter’s Hope is committed to giving hope through education and awareness, research, and family care for Leukodystrophies and Newborn Screening for Every Child. Every time. Everywhere.
Learn more about Hunter’s Hope here.
Krabbe Connect is dedicated to connecting patients, caregivers, healthcare providers, and researchers with the support and resources needed to optimize health, wellness, and advances in care.
Learn more about KrabbeConnect here.
ULF is focused on providing support to the leukodystrophy community and enable platforms to accelerate, improving patient quality of life, and finding cures.
Learn more about ULF here.
Patient Resources
International Foundations
ELA International’s mission is to inform and support families, fund medical research on leukodystrophies, develop internationally by creating branches to bring together as many families as possible, and to raise public awareness. ELA International is present in 9 countries: Belgium, France, Germany, Italy, Luxembourg, Spain, Switzerland, the Indian Ocean, and Japan.
Learn more about ELA here.
Fundacion Lautaro te Necesita’s mission is to contribute to improving the quality of life of all those affected by a leukodystrophy, promoting education and research to optimize diagnosis time and accessibility to treatments.
Learn more about Fundacion Lautaro te Necesita here.
Krabbe UK is a charity registered in the UK, supporting families affected by Krabbe Leukodystrophy. Krabbe UK additionally supports the community by championing research and raising awareness of the disease.
Learn more about Krabbe UK here.